prikaz prve stranice dokumenta The prevalence of muscular dystrophy and spinal muscular atrophy in Croatia: data from national and non-governmental organization registries
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The prevalence of muscular dystrophy and spinal muscular atrophy in Croatia: data from national and non-governmental organization registries
Croatian Medical Journal, 60 (2019), 6; 488-493. https://doi.org/10.3325/cmj.2019.60.488
Draušnik, Željka; Cerovečki, Ivan; Štefančić, Vesna; Mihel, Sandra; Stevanović, Ranko; Barišić, Nina; Matković, Hana; Melša, Matea; Mirić, Marica; Pjevač, Neda; Benjak, Tomislav

Citirajte ovaj rad

Draušnik, Ž., Cerovečki, I., Štefančić, V., Mihel, S., Stevanović, R., Barišić, N. ... Benjak, T. (2019). The prevalence of muscular dystrophy and spinal muscular atrophy in Croatia: data from national and non-governmental organization registries. Croatian Medical Journal, 60. (6), 488-493. doi: 10.3325/cmj.2019.60.488

Draušnik, Željka, et al. "The prevalence of muscular dystrophy and spinal muscular atrophy in Croatia: data from national and non-governmental organization registries." Croatian Medical Journal, vol. 60, br. 6, 2019, str. 488-493. https://doi.org/10.3325/cmj.2019.60.488

Draušnik, Željka, Ivan Cerovečki, Vesna Štefančić, Sandra Mihel, Ranko Stevanović, Nina Barišić, Hana Matković, et al. "The prevalence of muscular dystrophy and spinal muscular atrophy in Croatia: data from national and non-governmental organization registries." Croatian Medical Journal 60, br. 6 (2019): 488-493. https://doi.org/10.3325/cmj.2019.60.488

Draušnik, Ž., et al. (2019) 'The prevalence of muscular dystrophy and spinal muscular atrophy in Croatia: data from national and non-governmental organization registries', Croatian Medical Journal, 60(6), str. 488-493. doi: 10.3325/cmj.2019.60.488

Draušnik Ž, Cerovečki I, Štefančić V, Mihel S, Stevanović R, Barišić N, i sur.. The prevalence of muscular dystrophy and spinal muscular atrophy in Croatia: data from national and non-governmental organization registries. Croatian Medical Journal [Internet]. 2019. [pristupljeno 11.11.2024.];60(6):488-493. doi: 10.3325/cmj.2019.60.488

Ž. Draušnik, et al., "The prevalence of muscular dystrophy and spinal muscular atrophy in Croatia: data from national and non-governmental organization registries", Croatian Medical Journal, vol. 60, br. 6, str. 488-493, 2019. [Online]. Dostupno na: https://urn.nsk.hr/urn:nbn:hr:184:491616. [Citirano: 11.11.2024.]

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Podaci o radu
Naslov (engleski)The prevalence of muscular dystrophy and spinal muscular atrophy in Croatia: data from national and non-governmental organization registries
AutorŽeljka Draušnik
AutorIvan Cerovečki
AutorVesna Štefančić
AutorSandra Mihel
AutorRanko Stevanović
AutorNina Barišić
AutorHana Matković
AutorMatea Melša
AutorMarica Mirić
AutorNeda Pjevač
AutorTomislav Benjak
Autorova ustanovaSveučilište u Rijeci
Medicinski fakultet
(Katedra za socijalnu medicinu i epidemiologiju)
Znanstveno / umjetničko
područje, polje i grana		BIOMEDICINA I ZDRAVSTVO
Kliničke medicinske znanosti
Znanstveno / umjetničko
područje, polje i grana		BIOMEDICINA I ZDRAVSTVO
Javno zdravstvo i zdravstvena zaštita
Sažetak (engleski)
Aim To determine the prevalence of muscular dystrophy (MD) and spinal muscular atrophy (SMA) in Croatia by use of multiple epidemiological tools. Methods This epidemiological study collected data from three national patient registries and one database of a non-governmental organization (NGO) of MD and SMA patients. The study involved all individuals who either had undergone hospital treatment for MD or SMA, had consulted their primary health care providers for MD- and SMA-related symptoms, were listed as disabled due to MD or SMA, or were members of the mentioned NGO in 2016. In order to prevent double entries, we created a new database of all living individuals, each with a unique identification number. The prevalence rates for 2016 were calculated by age and sex groups.Results There were 926 patients diagnosed with MD (544 men). Most men diagnosed with MD were in the age group 10-19, whereas most women were in the age group 50-59. MD prevalence in Croatia was 22.2 per 100 000 population. There were 392 patients diagnosed with SMA (198 men). Most men with SMA were in the age group 50-59, whereas most women were in the age group 60-69. SMA prevalence in Croatia was 9.3 per 100 000 population. Conclusion SMA prevalence rate in Croatia is similar to SMA prevalence worldwide. However, MD prevalence rate is higher than worldwide estimates. This difference could be attributed to the fact that we could not confirm whether every patient registered in these databases actually met the diagnostic criteria for MD and SMA.
Ključne riječi (engleski)
Jezikengleski
Vrsta publikacijeZnanstveni rad - Izvorni znanstveni rad
Status objaveObjavljen
Vrsta recenzijeRecenziran
Verzija publikacijeObjavljena verzija rada (izdavačev PDF)
Naslov časopisaCroatian Medical Journal
Brojčani podacivol. 60, br. 6, str. 488-493
p-ISSN0353-9504
e-ISSN1332-8166
DOIhttps://doi.org/10.3325/cmj.2019.60.488
URN:NBNurn:nbn:hr:184:491616
Datum objave publikacije2019
URL dokumentahttps://hrcak.srce.hr/240110
Vrsta resursaTekst
Prava pristupaOtvoreni pristup
Uvjeti korištenjaIkona licence Imenovanje-Nekomercijalno 4.0 međunarodna (CC BY-NC 4.0)
Datum i vrijeme pohrane2022-03-11 16:44:43